Mother & Son Start Tourette Syndrome Support Group

News

STROUDSBURG, MONROE COUNTY (WBRE/WYOU) – An eight-year-old boy from the Poconos was diagnosed with Tourette Syndrome last year. With the help of his mom, he recently found a way to encourage other families facing the same challenges.

When Shane Perez was about two years old, his mom Kerry started noticing unusual behaviors.

“We would constantly be telling him to ‘stop, stop, stop’. But he couldn’t,” explains Kerry Perez, East Stroudsburg.

She took Shane to pediatricians who assured her the tics would eventually go away; but they didn’t.

Kerry decided to research her son’s symptoms, and what she found was shocking.

“I was up in the middle of the night Googling and I came across a site that talked about what Tourette Syndrome was, and it kind of gave a checklist of what the criteria is. I literally started crying, because I knew I had found exactly what was going on with him,” she recalls.

8-year-old Shane has different tics. He makes uncontrollable noises, repeats words, taps and twitches.

A fidget cube helps him get through class.

“A small figure in your head, like basically the back or the middle, is trying to control you. But they can’t really,” says Shane Perez, East Stroudsburg.

Kerry recently started a support group for families affected by Tourette’s. Bi-monthly meetings are held at the Hughes Library in Stroud Township.

Donna Emans is part of the group. Her 14-year-old daughter has Tourette’s.

“This is part of the process, and there is a process. It’s just having someone else’s hand to hold while you go through that,” says Donna Emans, Pocono Pines.

The next support group is scheduled for this Sunday, August 19th from 2-3 pm.

Contact Kerry at 570-478-3086 / poconotics@gmail.com

New members are always welcome. Meetings held in the Pullen Meeting Room, 2nd floor.

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